10-14 December the Public Health Data bootcamp took place introducing several European biobanks and health data registries and uncovering what data can be made available and how to access this. The startups and SMEs were encouraged to present their product or service and propose questions to biobanks and health data registries. The program was followed by matchmaking, where SMEs could reach out with a proposal for a collaboration.
Visionary keynote – Using health data for business / Lars Linsköld Med.Dr. (Portfolio manager, Sweper/ Swelife, Senior advisor AI.se, Regional developer Officier healthcare digitalization, Region Västra Götaland)
Introductions from Health registries & Biobanks:
Estonian Biobank (EE) /Neeme Tõnisson, MD, PhD (Estonian Biobank, University of Tartu; Tartu University Hospital)
The Estonian Biobank (EBB) is a population-based biobank of the Estonian Genome Center at the University of Tartu (EGCUT. Its cohort size is currently close to 200,000 participants (“gene donors” ≥ 18 years of age), which closely reflects the age, sex and geographical distribution of the Estonian population. Estonians represent 83%, Russians 14%, and other nationalities 3% of all participants. Genomic GWAS analyses have been performed on all gene donors, and RNA samples from 2,100 individuals are available for gene expression studies, along with 45 biomarkers from serum and plasma.
Lifelines biobank (NL) / Ilse Broeders, MSc (Project manager Research office Lifelines Data and Biobank, The Netherlands)
Lifelines is a large, multi-generational, prospective cohort study that includes over 167,000 participants (10%) from the northern population of the Netherlands. Through the length, size and in-depth examination we provide many excellent opportunities for studies worldwide unraveling the etiology of multifactorial diseases focusing on multifactor risk factors. Our aim is to enable research to better prevent, predict, diagnose and treat diseases. This is why we generate large amounts of data for the purpose of research on complex interactions between the environmental, phenotypic and genomic factors involved in the development of (chronic) diseases. A unique feature is the possibility for researchers to collect additional data or biomaterials by recalling participants and to analyse these in combination with general Lifelines data and samples.
Biobank West (SE) / Elin Stenfeldt, MSc (Biobank West, Sahlgrenska University Hospital)
Biobank West can assist researchers with collection, handling, storage and traceability of biobank samples. The biobank is operated by Region Västra Götaland in collaboration with the University of Gothenburg’s Core Facilities. The biobank operates using a quality-assured, standardized process, which means all samples are handled similarly. Biobank West also participates in Biobank Sweden, the national research infrastructure that, among other things, facilitates collaboration in multicenter studies through increased harmonization with national and international guidelines.
SCAPIS (SE) / Göran Bergström
Swedish CardioPulmonary Bioimage Study – SCAPIS
The aim of the Swedish CArdioPulmonary bioImage Study (SCAPIS) is to predict and prevent cardiovascular disease (CVD) and chronic obstructive pulmonary disease (COPD). The goal is to further develop individualised treatment and improve health care by building a nationwide, open-access, population-based cohort.
SCAPIS is a unique study that has recruited and investigated 30,000 men and women aged 50 to 64 years with detailed imaging and functional analyses of the cardiovascular and pulmonary systems.
Main funder of SCAPIS is the Swedish Heart-Lung Foundation and with considerable support from Knut and Alice Wallenbergs Foundation, Vinnova, The Swedish Research Council and the participating Universities and University Hospitals.
Panel – Success stories of collaboration between SMEs and health data registries
Jaak Sarv, Founder and CEO of Geneto. Jaak has 20 years of experience in software development and data science. Founder and CEO of Geneto, a personal medicine company that helps people to lose weight and avoid lifestyle diseases.They do this by combining the latest scientific discoveries in the field of genetics with diet and fitness app. They make genetic testing practical by giving daily actionable advice to our customers. They are using polygenic risk scores that we have developed together with Estonian Genome Center.
Neeme Tõnisson, MD, PhD, Group Leader at Estonian Biobank, University of Tartu, Clinical Geneticist in Tartu University Hospital
Sven Parkel, PhD, Secretary General at ScanBalt, General Manager at Tartu Biotechnology Park
Emil Syundyukov, PhD – computer scientist dedicated to problem-solving in Healthcare and Education. In parallel with academic experience, previously co-founded and worked in multiple Startup ventures, and for the last 2 years is a CTO of Longenesis.
Sachin Gaur (moderator), Director Operations, InnovatioCuris, is a researcher cum entrepreneur in space of mobile and Internet solutions. He is involved in multiple ventures in the domain of digital marketing, mobile solutions and the Internet of Things.